Showing posts with label frustration. Show all posts
Showing posts with label frustration. Show all posts

Friday, December 9, 2011

Mayo Clinic Jacksonville

Good morning children,

I've done my inpatient time at Mayo, and let me tell you first it is an entirely different level of care patient oriented and comfortable.
Room Service you don't order your meals with a stubby mini-golf pencil on a card with one or two options you have a full menu with great and worldly selections. There are Perkins all over the world right.
Well anyway after two days of sleep deprivation and food restriction (only allowed 2 meals), together we pulled multiple nasty syncopes out of me which showed nothing on the EEG.
My Neuro case managing Doc Dr. Shih sent my files over to the Neuro Oncology guys who found some lesions on my brain.
I am going back on the 12th, 13th, and 20th for more autonomic testing and Doc chats.

Wednesday, June 29, 2011

Doctors

So, went See my Personal Doctor yesterday he seems much more frustrated than I am, well I get to live with it. He really seemed to love the fact that the neurologist and the seizure specialist just wrote me off and washed their hands of me.
When you have an undiagnosed syncope issue (passing out) you get used to that kind of treatment. You go to the ER scared to death and they say ah it's just syncope and send you on your merry way. Well five months later with no work, driving, or any activity in which you can possibly hurt yourself and daily blackouts that feel like you are dying I guess you just get used to living with it.

Talking about living the 4th of July weekend is coming up and I used to be a pyrotechnician and special effects guy so needless to say depression will set in in the next week and I won't be very fun to be around. Smelling like hell and being covered in black powder grease and small burns was the best feeling I have ever had. even worse now that I have my arms fixed and can swing a hammer and such I can't work because of the freekin' syncope. NO BLACKING OUT ON THE FIRING LINE! oh well Maybe I'll sit in the house and comfort the dogs if any pyro is shot, in this years drought, at all.